Books about Als: Updated Guide to Essential Reading

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Every Note Played

by Lisa Genova

Every Note Played by Lisa Genova is a poignant and gripping novel that delves into the devastating effects of amyotrophic lateral sclerosis (ALS). The story follows renowned concert pianist Richard, who is diagnosed with the neurodegenerative disease and begins to rapidly lose control of his body. As he grapples with the physical and emotional toll of the illness, he is forced to confront his past and reconcile with his ex-wife Karina, who becomes his primary caregiver. The novel sensitively explores the complexities of their relationship and the impact of ALS on their lives, as well as the resilience and strength that emerge in the face of such adversity.

This compelling and heart-wrenching book about ALS offers a moving portrayal of the challenges and heartbreak that accompany the disease, while also celebrating the power of human connection and the capacity for hope in the darkest of times. Every Note Played is a powerful and thought-provoking read that sheds light on the realities of living with ALS and the profound impact it has on both the individual and their loved ones.

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Until I Say Goodbye: My Year of Living with Joy

by Susan Spencer-Wendel

Until I Say Goodbye: My Year of Living with Joy is a poignant memoir by Susan Spencer-Wendel that chronicles her experiences after being diagnosed with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. This remarkable book on ALS takes readers on a journey of hope, resilience, and the power of living life to the fullest in the face of a devastating diagnosis. Through heartfelt storytelling, Susan shares her determination to create lasting memories with her loved ones and embrace joy in the time she has left. Her unwavering positivity and courage in the midst of adversity are truly inspiring.

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The Ice Bucket Challenge: Pete Frates and the Fight against ALS

by Casey Sherman and Dave Wedge

The Ice Bucket Challenge: Pete Frates and the Fight against ALS is a compelling book about ALS that delves into the inspiring true story of Pete Frates, a former college athlete who was diagnosed with amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. The book, written by Casey Sherman and Dave Wedge, takes readers on a journey through Frates’ life as he bravely battles the debilitating effects of the disease while also becoming a driving force behind the viral phenomenon known as the Ice Bucket Challenge.

Through vivid storytelling and in-depth research, Sherman and Wedge highlight Frates’ unwavering spirit and determination to raise awareness and funds for ALS research. The authors also explore the incredible impact of the Ice Bucket Challenge, which became a global sensation and raised millions of dollars for ALS research.

The Ice Bucket Challenge: Pete Frates and the Fight against ALS is a powerful and moving account of one man’s fight against a devastating disease and the extraordinary movement it inspired. It is a must-read for anyone seeking inspiration and hope in the face of adversity.

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Rowing Without Oars: A Memoir of Living and Dying

by Ulla-Carin Lindquist

Rowing Without Oars: A Memoir of Living and Dying by Ulla-Carin Lindquist is a poignant and powerful book about ALS. Lindquist shares her personal journey with the devastating disease, offering a raw and honest account of the challenges she faced and the resilience she found within herself. Through her evocative storytelling, she takes readers on a profound and emotional exploration of life, love, and the human spirit in the face of adversity.

With lyrical prose and unflinching vulnerability, Lindquist invites readers into her world, where every moment is precious and every breath is a triumph. Her memoir is a testament to the strength and courage found in the darkest of times, and a reminder to cherish the gift of life. Rowing Without Oars is a stirring book on ALS that will resonate with readers on a deeply personal level, leaving a lasting impact and a renewed appreciation for the beauty of the human experience.

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The Short and Tragic Life of Robert Peace

by Jeff Hobbs

The Short and Tragic Life of Robert Peace by Jeff Hobbs tells the captivating and heartbreaking story of a brilliant young man who struggles to navigate the complexities of race, class, and identity. The book chronicles the life of Robert Peace, a brilliant student from a rough neighborhood in Newark, New Jersey, who manages to escape the streets and attend Yale University. However, despite his academic success, Robert finds himself torn between the world of academia and the streets he left behind. His life takes a tragic turn, and the book delves into the complexities of his relationships, his struggles, and the choices that ultimately lead to his downfall. Through meticulous research and intimate storytelling, Hobbs presents a compelling portrait of a young man who grapples with the weight of his past and the expectations of his future. The Short and Tragic Life of Robert Peace is a powerful and poignant exploration of the barriers that hinder success and the complexities of the human experience.

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The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism

by Naoki Higashida

The Reason I Jump is a remarkable book on autism written by Naoki Higashida, a thirteen-year-old boy with autism. Through a series of questions and answers, Naoki provides an introspective and enlightening look into the inner world of someone living with autism. The book offers a unique perspective on the challenges and triumphs of daily life for individuals with autism, providing valuable insights for parents, caregivers, and anyone seeking to better understand the condition.

Naoki’s candid and heartfelt responses offer a rare glimpse into the thoughts and feelings of someone living with autism, dispelling misconceptions and shedding light on the inner workings of the autistic mind. The Reason I Jump is a compelling and eye-opening read that challenges readers to reconsider their preconceptions about autism and embrace a deeper understanding of the condition. This poignant and insightful book about autism is a must-read for anyone looking to gain a deeper understanding of the condition and the individuals who live with it.

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The Bright Hour: A Memoir of Living and Dying

by Nina Riggs

The Bright Hour: A Memoir of Living and Dying by Nina Riggs is a poignant and beautifully written account of the author’s journey with terminal cancer. Riggs, a talented writer and poet, shares her experiences with grace, humor, and insight, offering readers a raw and honest portrayal of her emotional and physical struggles. Through her lyrical prose, she explores the meaning of life, love, and mortality, while also delving into the complexities of motherhood and marriage in the face of impending loss.

This deeply moving memoir is a stirring meditation on the fragility of life and the resilience of the human spirit. Riggs’s unflinching portrayal of her battle with the disease is both heart-wrenching and uplifting, and her reflections on the beauty of the world around her are both profound and life-affirming. The Bright Hour is a testament to the power of love, hope, and the indomitable human will, and a reminder to cherish every moment we have. This book is a must-read for anyone seeking inspiration and solace in the face of adversity.

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The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After

by Julie Yip-Williams

The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After by Julie Yip-Williams is a poignant and deeply moving book about ALS. The author, diagnosed with a rare and terminal form of cancer, shares her experiences and struggles with grace and honesty. Yip-Williams takes readers on a journey through her life, from her childhood in Vietnam to her battle with illness in the United States.

This memoir is a powerful exploration of love, loss, and the human spirit. Yip-Williams reflects on the fragility of life and the beauty of the everyday, offering profound insights into the nature of existence and the meaning of mortality. Her writing is both lyrical and raw, capturing the complexities of human emotion and the resilience of the human heart.

The Unwinding of the Miracle is a testament to the power of hope and the importance of living life to the fullest, even in the face of unimaginable adversity. It is a book on ALS that will resonate with readers and leave a lasting impact on their hearts and minds.

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The Sound of a Wild Snail Eating

by Elisabeth Tova Bailey

The Sound of a Wild Snail Eating by Elisabeth Tova Bailey is a captivating and introspective memoir that delves into the author’s experience of being bedridden with a debilitating illness. This extraordinary book offers a unique perspective on the human experience and the wonders of the natural world. The author’s profound observations of a wild snail that becomes her companion while she battles a mysterious illness make for a poignant and thought-provoking read. As she navigates the challenges of her condition, Bailey finds solace and inspiration in the small, everyday activities of her tiny gastropod friend. Through her lyrical prose, the author shares her journey of resilience, acceptance, and finding beauty in unexpected places.

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The Diving Bell and the Butterfly

by Jean-Dominique Bauby

The Diving Bell and the Butterfly is a remarkable memoir written by Jean-Dominique Bauby, the former editor-in-chief of French Elle magazine. This poignant and powerful book chronicles Bauby’s life after he suffered a devastating stroke that left him with locked-in syndrome, a condition in which the body is completely paralyzed but the mind remains intact. Through sheer determination and the support of his loved ones, Bauby found a way to communicate by blinking his left eyelid, and using this method, he dictated the entirety of the book. The result is a stunning and intimate account of his experiences, thoughts, and memories as he navigates his new reality.

This book is a profound exploration of the human spirit and the resilience of the human mind in the face of extreme adversity. It offers a unique perspective on life, love, and the power of the written word. The Diving Bell and the Butterfly is an extraordinary and inspiring read that will stay with you long after you turn the final page.

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The End of Your Life Book Club

by Will Schwalbe

The End of Your Life Book Club by Will Schwalbe is a poignant and compelling memoir about the author’s experience reading and discussing books with his mother as she undergoes treatment for terminal cancer. The book explores the power of literature to connect people and provide solace during difficult times. Schwalbe shares the touching and intimate conversations he has with his mother about a wide range of books, from classic novels to contemporary bestsellers, as they navigate the challenges of her illness together. The End of Your Life Book Club is a heartfelt tribute to the bond between a mother and son, as well as a celebration of the transformative power of literature. This book is a must-read for anyone seeking a deeper understanding of the human experience and the ways in which books can offer comfort and companionship in the face of adversity.

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The Last Lecture

by Randy Pausch

The Last Lecture by Randy Pausch is an inspirational memoir that captures the essence of living life to the fullest in the face of adversity. Pausch, a computer science professor diagnosed with a terminal illness, delivers a moving lecture about achieving childhood dreams and embracing every moment. The book serves as a reminder to cherish the time we have and to pursue our passions relentlessly.

Through his poignant storytelling, Pausch shares valuable life lessons on perseverance, determination, and the power of optimism. His words resonate deeply, making the book a compelling read for anyone seeking motivation and guidance in the midst of life’s challenges. The Last Lecture is a testament to the human spirit and a celebration of the indomitable will to live fully, even in the face of daunting circumstances. This book is a must-read for those seeking inspiration and a renewed perspective on the preciousness of life.

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When Breath Becomes Air

by Paul Kalanithi

When Breath Becomes Air is a poignant and thought-provoking memoir by Paul Kalanithi, a neurosurgeon who was diagnosed with a terminal illness. In this profound book on ALS, Kalanithi reflects on the intersection of life and death, as he grapples with his own mortality while continuing to search for meaning and purpose in the face of adversity.

As a book about ALS, When Breath Becomes Air offers a raw and intimate look at the human experience, exploring themes of love, identity, and the pursuit of knowledge. Kalanithi’s eloquent prose and deep insights into the human condition make this book a compelling and unforgettable read.

Through his journey, Kalanithi shares his struggles and triumphs, inviting readers to contemplate their own existence and the choices they make in life. When Breath Becomes Air is a moving testament to the resilience of the human spirit, and a reminder to cherish every moment we have.

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The Still Point of the Turning World

by Emily Rapp

The Still Point of the Turning World by Emily Rapp is a poignant and heart-wrenching memoir that delves into the author’s experience of raising a child with a terminal illness. This deeply personal book on ALS chronicles Rapp’s journey as she navigates the overwhelming emotions, challenges, and complexities of caring for her son, Ronan, who was diagnosed with a rare genetic disorder. Through exquisite prose and raw honesty, Rapp explores the themes of love, loss, and the profound impact of living in the face of mortality. With vivid storytelling and emotional depth, the book about ALS offers a powerful reflection on the fragility of life and the resilience of the human spirit. Rapp’s unflinching portrayal of her experiences invites readers to contemplate the universal themes of grief, hope, and the capacity for grace in the midst of devastating circumstances. The Still Point of the Turning World is a haunting and beautifully crafted memoir that will leave a lasting impression on anyone who reads it.

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The Year of Living Danishly: Uncovering the Secrets of the World’s Happiest Country

by Helen Russell

The Year of Living Danishly: Uncovering the Secrets of the World’s Happiest Country by Helen Russell is a captivating exploration of Denmark’s unique culture and lifestyle. In this insightful book, Russell shares her experiences of moving to Denmark with her husband and delves into the reasons behind the country’s high levels of happiness. Through engaging anecdotes and in-depth research, she uncovers the Danish way of life, from their work-life balance and welfare system to their love for hygge (coziness) and commitment to social equality.

With humor and wit, Russell provides a fascinating glimpse into the Danish mindset and offers valuable lessons on how to incorporate elements of Danish living into our own lives. Whether you’re interested in travel, cultural studies, or simply improving your own happiness, this book is a must-read. It’s a delightful blend of memoir, travelogue, and self-help, making it a perfect choice for anyone looking to learn more about what makes Denmark the ‘happiest country in the world.’

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The Immortal Life of Henrietta Lacks

by Rebecca Skloot

The Immortal Life of Henrietta Lacks by Rebecca Skloot is a gripping non-fiction book that delves into the story of Henrietta Lacks, a woman whose cells were unknowingly taken for medical research in the 1950s. These cells, known as HeLa cells, went on to become instrumental in countless scientific breakthroughs, including the development of the polio vaccine and advancements in cancer research. Skloot weaves together Lacks’ personal history, the ethical implications of using her cells without her consent, and the impact of her legacy on the scientific community. The book also explores the Lacks family’s experiences and their struggle for recognition and compensation.

Skloot’s meticulous research and compelling storytelling make this book a fascinating and thought-provoking read. It raises important questions about medical ethics, informed consent, and the intersection of race and healthcare. The Immortal Life of Henrietta Lacks is a powerful exploration of the complex and often overlooked human stories behind scientific advancements.

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The Glass Castle

by Jeannette Walls

The Glass Castle by Jeannette Walls is a poignant memoir that chronicles the author’s tumultuous and unconventional upbringing. Growing up in a dysfunctional and nomadic family, Walls recounts her experiences with resilience and candor. The book offers a raw and honest portrayal of poverty, neglect, and the enduring love between family members.

Walls paints a vivid picture of her unconventional parents, who are both eccentric and deeply flawed. Her father, a charismatic but unreliable dreamer, and her mother, a free-spirited artist, lead the family on a chaotic journey filled with hardships and unexpected moments of beauty. The title of the book refers to the dream of building a glass castle, a metaphor for the family’s unattainable but enduring hope for a better future.

The Glass Castle is a compelling and unforgettable memoir that delves into themes of resilience, forgiveness, and the complexities of family dynamics. It is a powerful and inspiring story that will resonate with readers long after they have turned the final page.

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Educated: A Memoir

by Tara Westover

Educated: A Memoir by Tara Westover is a captivating and inspiring tale of resilience and determination. The book details Westover’s journey from growing up in a strict and isolated household in rural Idaho to eventually earning a PhD from Cambridge University. Despite facing numerous challenges, including a lack of formal education and a tumultuous family dynamic, Westover’s thirst for knowledge and desire for a better life propel her forward. Her story is a testament to the power of education and the human spirit.

This poignant memoir offers a raw and honest portrayal of Westover’s experiences, including her struggles with identity, family loyalty, and the pursuit of truth. It is a compelling narrative that will resonate with readers who appreciate stories of triumph over adversity and the strength of the human mind. Whether you’re looking for a book on ALS, a book about ALS, or an ALS book, Educated offers a powerful and thought-provoking exploration of resilience and the pursuit of knowledge.

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Tuesdays with Morrie

by Mitch Albom

Tuesdays with Morrie is a heartwarming memoir by Mitch Albom that chronicles his reconnection with his former college professor, Morrie Schwartz. The book delves into the profound and life-changing conversations the two share every Tuesday as Morrie battles with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. Through their discussions, Morrie imparts his wisdom on life, love, forgiveness, and the inevitability of death, offering valuable lessons that resonate deeply with readers.

The story is a poignant exploration of the human experience, friendship, and the importance of living a fulfilling life. It captures the essence of Morrie’s unwavering spirit in the face of adversity and serves as a reminder to embrace the present moment and cherish the relationships that enrich our lives. Tuesdays with Morrie is a compelling and uplifting read that leaves a lasting impact on its audience, making it a timeless classic and a must-read for anyone seeking inspiration and insight into the human condition.

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I’ll Push You: A Journey of 500 Miles, Two Best Friends, and One Wheelchair

by Patrick Gray and Justin Skeesuck

I’ll Push You is a heartwarming and inspiring book about friendship, determination, and the power of the human spirit. Written by Patrick Gray and Justin Skeesuck, the book tells the remarkable true story of their journey along the Camino de Santiago, a 500-mile trek across Spain. What makes their journey unique is that Justin, who has a neuromuscular disease similar to ALS, is confined to a wheelchair. Despite the challenges they face, Patrick selflessly pushes Justin every step of the way, demonstrating the true meaning of friendship and loyalty.

This incredible tale of resilience and camaraderie is a testament to the strength of the human bond and the ability to overcome seemingly insurmountable obstacles. I’ll Push You is a must-read for anyone looking for a powerful and uplifting story of love, friendship, and the triumph of the human spirit. This book about ALS will inspire and move readers, leaving a lasting impression long after the final page is turned.