Are you or a loved one dealing with a chronic illness? Finding comfort, information, and inspiration in the pages of a book can be a powerful source of support. Whether you’re seeking personal narratives, practical advice, or a deeper understanding of chronic illness, the right book can make a world of difference. In this article, we’ve curated a list of the 20 best books about chronic illness that cover a wide range of conditions and perspectives. From memoirs to self-help guides, these chronic illness books offer valuable insights and empathy for anyone navigating the challenges of living with a chronic condition.
Contents
- 1 20 Best Chronic Illness Books
- 2 The Bright Hour: A Memoir of Living and Dying
- 3 When Breath Becomes Air
- 4 Sick: A Memoir
- 5 The Sound of a Wild Snail Eating
- 6 The Empathy Exams: Essays
- 7 The Diving Bell and the Butterfly
- 8 Brain on Fire: My Month of Madness
- 9 The Year of Living Danishly: Uncovering the Secrets of the World’s Happiest Country
- 10 The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After
- 11 The Rules Do Not Apply: A Memoir
- 12 The Man Who Couldn’t Stop: OCD and the True Story of a Life Lost in Thought
- 13 The Still Point of the Turning World
- 14 The Yellow House
- 15 The Cancer Journals
- 16 The Immortal Life of Henrietta Lacks
- 17 This Is Really Happening
- 18 Braving the Wilderness: The Quest for True Belonging and the Courage to Stand Alone
- 19 H is for Hawk
- 20 The Pain Chronicles: Cures, Myths, Mysteries, Prayers, Diaries, Brain Scans, Healing, and the Science of Suffering
- 21 The Fragile World: A Novel
- 22 Final Thoughts on Best Chronic Illness Books
- 23
20 Best Chronic Illness Books
The Bright Hour: A Memoir of Living and Dying
by Nina Riggs
The Bright Hour: A Memoir of Living and Dying by Nina Riggs is a powerful and poignant exploration of life, love, and mortality in the face of a terminal cancer diagnosis. Riggs, a talented writer and mother of two young boys, beautifully captures the complexities of living with a life-limiting illness. Through her lyrical prose and unflinching honesty, she shares her experiences of navigating the challenges and uncertainties of her diagnosis while finding moments of joy and beauty in the everyday.
This memoir is not just a book about chronic illness; it is a testament to the human spirit and the resilience of the human heart. Riggs’ reflections on love, loss, and the fragility of life will resonate with readers as she grapples with the profound questions that arise when facing mortality. Her words are a reminder to cherish each moment and find meaning in the midst of pain and uncertainty. The Bright Hour is a moving and unforgettable chronic illness book that offers a profound meditation on life, death, and the enduring power of love.
When Breath Becomes Air
by Paul Kalanithi
When Breath Becomes Air by Paul Kalanithi is a poignant memoir that delves into the profound questions of life and mortality. Kalanithi, a neurosurgeon, was diagnosed with terminal lung cancer at the age of 36. In this memoir, he reflects on his journey from being a doctor to a patient, and how his perspective on life and death shifted in the face of his illness.
The book is a powerful exploration of the human condition, grappling with themes of identity, purpose, and the meaning of life in the midst of illness. Kalanithi’s eloquent prose and introspective storytelling invite readers to contemplate their own mortality and the fragility of life. Through his deeply personal narrative, he not only shares the struggles of living with a chronic illness, but also offers profound insights into the human experience.
When Breath Becomes Air is a moving and thought-provoking read, offering a unique perspective on the complexities of living with a chronic illness and finding meaning in the face of mortality.
Sick: A Memoir
by Porochista Khakpour
Sick: A Memoir by Porochista Khakpour is a powerful and raw exploration of the author’s struggle with chronic illness. Khakpour shares her harrowing journey with honesty and vulnerability, providing an intimate look at the physical and emotional toll of her illness.
The memoir delves into the complexities of navigating the medical system, grappling with the stigma and misunderstandings surrounding chronic illness, and the profound impact it has on every aspect of one’s life. Khakpour’s lyrical prose and unflinching portrayal of her experiences make this a compelling and deeply affecting read.
Through her personal story, Khakpour sheds light on the challenges faced by those living with chronic illness and offers a poignant reflection on the search for healing and identity. Sick is a poignant and thought-provoking chronicle of resilience, survival, and the pursuit of hope in the face of adversity. It is a must-read for anyone seeking to gain insight into the lived experience of chronic illness.
The Sound of a Wild Snail Eating
by Elisabeth Tova Bailey
The Sound of a Wild Snail Eating by Elisabeth Tova Bailey is a captivating and insightful book about chronic illness. The author shares her own experience of being bedridden due to a mysterious illness and finding solace in observing a wild snail that was brought to her bedside. As she watches the snail go about its daily activities, Bailey reflects on the resilience of nature and the small wonders that can bring joy even in the midst of suffering.
This chronic illness book is a beautifully written exploration of the emotional and physical challenges of living with illness, as well as the profound connections that can be found in unexpected places. Bailey’s lyrical prose and keen observations make this a truly unique and moving read, offering a fresh perspective on the experience of illness and the healing power of nature. The Sound of a Wild Snail Eating is a poignant and uplifting meditation on finding beauty and meaning in the midst of hardship.
The Empathy Exams: Essays
by Leslie Jamison
The Empathy Exams: Essays by Leslie Jamison is a thought-provoking collection of essays that delves into the complexities of human connection and understanding. Jamison explores a wide range of topics, from her own personal experiences with illness to the phenomenon of society’s obsession with suffering. Through her eloquent and deeply personal writing, she challenges readers to examine their own capacity for empathy and compassion.
One of the standout themes of the book is the exploration of pain and the experience of illness. Jamison skillfully discusses the nuances of chronic illness and the impact it has on individuals and those around them. Her poignant and insightful observations offer a fresh perspective on the emotional and physical toll of living with chronic conditions.
Overall, The Empathy Exams is a captivating and introspective read that will resonate with anyone seeking to better understand the human experience. This book is an essential read for those interested in exploring the complexities of empathy and the profound impact of chronic illness on individuals and society.
The Diving Bell and the Butterfly
by Jean-Dominique Bauby
The Diving Bell and the Butterfly by Jean-Dominique Bauby is a remarkable memoir that offers a poignant and deeply personal account of living with a severe physical disability. Bauby, the former editor of French Elle magazine, suffered a devastating stroke that left him with locked-in syndrome, a condition in which he was completely paralyzed, unable to speak, and only able to communicate by blinking one eye.
Despite his profound limitations, Bauby composed the memoir by painstakingly dictating the entire book letter by letter, blinking as someone recited the alphabet until they reached the desired letter. The result is a stunning and intimate reflection on the human spirit, resilience, and the power of the written word. The book offers a unique perspective on the experience of living with a profound and life-altering condition, and it has been widely acclaimed for its lyrical prose and profound insights. The Diving Bell and the Butterfly is a must-read for anyone seeking a deeper understanding of the human experience in the face of adversity.
Brain on Fire: My Month of Madness
by Susannah Cahalan
Brain on Fire: My Month of Madness by Susannah Cahalan is a gripping memoir that delves into the author’s harrowing experience with a rare autoimmune disease that initially went undiagnosed. The book chronicles Cahalan’s descent into madness as she grapples with unexplained symptoms such as hallucinations, paranoia, and seizures. As her condition worsens, Cahalan struggles to maintain her grip on reality, and her family and doctors are left baffled by her mysterious illness.
Through a combination of medical detective work and Cahalan’s own determination, she is eventually diagnosed with anti-NMDA receptor encephalitis, a rare and often misdiagnosed autoimmune disease that affects the brain. The memoir provides a raw and honest account of Cahalan’s terrifying journey through misdiagnosis and mistreatment, ultimately leading to her road to recovery.
Brain on Fire is a poignant and eye-opening account of the impact of chronic illness on an individual’s life, as well as the importance of perseverance and advocacy in the face of medical challenges.
The Year of Living Danishly: Uncovering the Secrets of the World’s Happiest Country
by Helen Russell
The Year of Living Danishly: Uncovering the Secrets of the World’s Happiest Country by Helen Russell is a delightful and insightful exploration of Denmark’s unique culture and lifestyle. After her husband’s job takes them to rural Jutland, Russell becomes intrigued by Denmark’s consistently high happiness rankings. Determined to uncover the secrets behind this, she immerses herself in Danish life, from learning about their work-life balance to their love of hygge (coziness).
Russell’s engaging storytelling and witty observations make this book a joy to read as she delves into the Danish way of living, uncovering the reasons behind their contentment. She explores the Danish approach to work, family, and community, and how it all contributes to their overall happiness. The Year of Living Danishly is not just a travel memoir, but also a guide to finding happiness in everyday life, no matter where you are. Whether you’re interested in Danish culture, seeking a new perspective on life, or simply looking for a heartwarming and humorous read, this book is a must-read.
The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After
by Julie Yip-Williams
The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After by Julie Yip-Williams is a poignant and deeply moving chronic illness book. Julie Yip-Williams shares her personal journey with terminal cancer, offering a raw and honest account of her experiences and emotions as she faces the reality of her mortality.
Through beautifully written prose, Yip-Williams reflects on her life, the challenges of living with illness, and the complexities of facing death. She explores the profound impact of her diagnosis on her relationships, her identity, and her sense of purpose. The memoir also delves into the universal themes of love, loss, and the search for meaning in the face of adversity.
This book about chronic illness is a powerful testament to the resilience of the human spirit and the importance of embracing life, even in the shadow of death. Yip-Williams’ unwavering honesty and vulnerability make this memoir a compelling and unforgettable read for anyone seeking insight into the human experience.
The Rules Do Not Apply: A Memoir
by Ariel Levy
The Rules Do Not Apply is a memoir by Ariel Levy that delves into the author’s personal journey of self-discovery, loss, and resilience. In this compelling and raw account, Levy shares her experiences of navigating love, career, and ultimately facing the harsh realities of life. The memoir offers a poignant exploration of the human condition, inviting readers to reflect on their own vulnerabilities and the unpredictable nature of existence. Through her powerful and evocative storytelling, Levy grapples with themes of ambition, motherhood, and the pursuit of happiness amidst life’s unforeseen challenges. This memoir is a captivating and honest portrayal of one woman’s quest for understanding and acceptance in the face of adversity. With its intimate narrative and profound insights, The Rules Do Not Apply is a must-read for anyone seeking a profound and enlightening exploration of the complexities of life. It’s a remarkable chronic illness book that will resonate with readers on a deep and emotional level.
The Man Who Couldn’t Stop: OCD and the True Story of a Life Lost in Thought
by David Adam
The Man Who Couldn’t Stop: OCD and the True Story of a Life Lost in Thought by David Adam is a captivating exploration of obsessive-compulsive disorder (OCD). Through a combination of personal experience and scientific research, Adam delves into the intricate and often debilitating world of OCD, offering readers a deep understanding of the condition. With a compelling narrative and insightful analysis, the book provides an intimate look at the author’s own struggles with OCD, as well as the experiences of others living with the condition. Adam’s writing is both informative and empathetic, shedding light on the impact that OCD can have on a person’s life, relationships, and mental well-being. This book about chronic illness is a must-read for anyone seeking to gain a deeper understanding of OCD and the challenges faced by those living with this complex disorder. The Man Who Couldn’t Stop is a powerful and enlightening exploration of the complexities of OCD, and a valuable resource for anyone interested in mental health and well-being.
The Still Point of the Turning World
by Emily Rapp
The Still Point of the Turning World by Emily Rapp is a poignant and heart-wrenching memoir that delves into the author’s experience as a mother to a child diagnosed with a life-threatening illness. Rapp artfully explores the complexities of grief, love, and the harsh realities of parenting a child with a terminal condition. The book is a raw and intimate portrayal of the emotional and psychological turmoil that comes with navigating the uncertain terrain of chronic illness.
Through her powerful prose, Rapp invites readers to bear witness to her journey, offering a candid and unflinching look at the challenges and profound moments of grace that come with caring for a child with a life-limiting illness. The Still Point of the Turning World is a profoundly moving and beautifully written account that sheds light on the universal human experience of love and loss in the face of adversity. This book about chronic illness is a must-read for anyone seeking a deeper understanding of the complexities of caregiving and the resilience of the human spirit.
The Yellow House
by Sarah M. Broom
The Yellow House by Sarah M. Broom is a powerful memoir that delves into the author’s experiences growing up in New Orleans East, a neighborhood that was devastated by Hurricane Katrina. Broom’s poignant storytelling weaves together the history of her family and the city, painting a vivid picture of the place she called home. The book explores themes of identity, race, and the impact of chronic illness on her family, as her mother battles cancer. Broom’s lyrical prose and deeply personal reflections make this memoir a captivating and emotional read. The Yellow House is not just a book about chronic illness, but a testament to resilience and the enduring bonds of family. It’s a story that will stay with you long after you’ve turned the last page, and a must-read for anyone looking for a compelling and thought-provoking memoir.
The Cancer Journals
by Audre Lorde
The Cancer Journals by Audre Lorde is a powerful and intimate exploration of the author’s experience with breast cancer. This groundbreaking memoir delves into the emotional and physical challenges of living with a chronic illness, offering a raw and unflinching look at the impact of cancer on Lorde’s identity, relationships, and sense of self. Through lyrical prose and unapologetic honesty, Lorde reflects on the intersection of illness, womanhood, and race, challenging societal norms and offering a deeply personal perspective on the experience of living with a chronic illness. Her words are both poignant and empowering, providing a voice for those grappling with their own battles with cancer or other chronic illnesses. The Cancer Journals is a courageous and necessary addition to the literary landscape, offering a unique and vital perspective on the experience of living with a chronic illness.
The Immortal Life of Henrietta Lacks
by Rebecca Skloot
The Immortal Life of Henrietta Lacks by Rebecca Skloot is a captivating non-fiction book that delves into the life and legacy of Henrietta Lacks, a woman whose cells were taken without her knowledge and have since become a crucial part of medical research. This book is not just a biography, but also a thought-provoking exploration of medical ethics, racial inequality, and the impact of scientific advancements on individuals and their families.
Skloot skillfully weaves together the story of Henrietta Lacks and her immortal cells with her own journey to uncover the truth behind their use in scientific research. The book sheds light on the complexities of healthcare, the exploitation of marginalized communities, and the enduring impact of chronic illness on individuals and their loved ones.
By humanizing the story of Henrietta Lacks and her family, The Immortal Life of Henrietta Lacks raises important questions about consent, privacy, and the responsibilities of the medical community. It is a compelling and enlightening read for anyone interested in medical history, bioethics, or the human experience of living with a chronic illness.
This Is Really Happening
by Erin Chack
This Is Really Happening by Erin Chack is a candid and touching memoir that delves into the author’s personal experiences with health struggles. Chack’s witty and insightful writing style allows readers to connect with her as she opens up about her battle with a chronic illness and the impact it has had on her life. Through a series of poignant and often humorous essays, she shares the challenges, triumphs, and lessons that have come with her diagnosis.
Chack’s raw and honest storytelling offers a refreshing perspective on living with a chronic illness, as she navigates the ups and downs with resilience and humor. This book is a must-read for anyone looking for a relatable and inspiring account of living with a chronic condition, as it provides insight into the emotional and physical toll of illness while also celebrating the strength and resilience of the human spirit. This Is Really Happening is a powerful and uplifting read that sheds light on the realities of living with a chronic illness.
Braving the Wilderness: The Quest for True Belonging and the Courage to Stand Alone
by Brene Brown
Braving the Wilderness by Brene Brown is a powerful exploration of the human need for connection and belonging, especially in the face of adversity. Brown, a renowned researcher and storyteller, delves into the complexities of what it means to truly belong and the courage it takes to stand alone when necessary. She draws on her own experiences and extensive research to shed light on the challenges of finding true belonging in a society that often values conformity over authenticity.
This thought-provoking book goes beyond the surface level of social connection and delves into the deeper emotional and psychological aspects of belonging. Brown’s insightful exploration of vulnerability, shame, and empathy provides valuable insights for anyone who has ever felt like they don’t quite fit in. While not specifically a chronic illness book, the themes of resilience and self-acceptance are highly relevant to those navigating the challenges of chronic illness. Braving the Wilderness is a must-read for anyone seeking to understand the complexities of human connection and find the courage to stand alone when necessary.
H is for Hawk
by Helen Macdonald
H is for Hawk by Helen Macdonald is a captivating memoir that delves into the author’s journey of grief and healing after the sudden loss of her father. Macdonald’s profound grief leads her to adopt and train a goshawk, a notoriously difficult bird of prey, as a way to cope with her overwhelming emotions. Through her experiences with the hawk, Macdonald beautifully weaves together themes of nature, identity, and the complexities of human-animal relationships.
This deeply personal and introspective book offers a unique perspective on the healing process, as Macdonald grapples with her own vulnerability and the challenges of training a wild creature. Her lyrical prose and raw emotional honesty make H is for Hawk a profoundly moving read that resonates with anyone who has experienced loss or is grappling with the complexities of grief. This book is a must-read for anyone seeking a beautifully written exploration of the human experience.
The Pain Chronicles: Cures, Myths, Mysteries, Prayers, Diaries, Brain Scans, Healing, and the Science of Suffering
by Melanie Thernstrom
The Pain Chronicles: Cures, Myths, Mysteries, Prayers, Diaries, Brain Scans, Healing, and the Science of Suffering by Melanie Thernstrom is a captivating exploration of the complexities surrounding chronic illness. Thernstrom delves into the history of pain, from ancient remedies to modern medical advancements, and examines the cultural, spiritual, and psychological aspects of suffering. Through a combination of personal anecdotes, scientific research, and interviews with experts, she offers a comprehensive understanding of the experience of living with chronic pain.
This deeply insightful book about chronic illness challenges conventional beliefs and sheds light on the misconceptions and stigmas surrounding pain. Thernstrom’s compelling writing style and meticulous research make this a must-read for anyone seeking a deeper understanding of the physical and emotional toll of chronic illness. Whether you are personally affected by chronic pain or simply interested in the science of suffering, The Pain Chronicles is a thought-provoking and enlightening exploration of a topic that touches us all.
The Fragile World: A Novel
by Paula Treick DeBoard
The Fragile World is a poignant and heartwrenching novel by Paula Treick DeBoard that delves into the complexities of family, love, and the impact of chronic illness. The story follows the Webster family as they navigate the challenges of caring for their son who has a debilitating illness. As they struggle to cope with the emotional and financial burden, they are forced to confront their own internal conflicts and the strain it puts on their relationships.
DeBoard’s beautiful and evocative prose captures the raw emotions and vulnerabilities of each character, drawing readers into their world and allowing them to empathize with their struggles. The novel skillfully explores themes of resilience, compassion, and the power of human connection in the face of adversity. The Fragile World is a moving and thought-provoking book about chronic illness that will resonate with readers and leave a lasting impression.
Final Thoughts on Best Chronic Illness Books
Chronic Illness can be a challenging journey, but these 20 best books about chronic illness offer hope, understanding, and practical advice for those navigating this difficult terrain. Whether you’re seeking inspiration, knowledge, or simply a sense of solidarity, these books are essential reading for anyone facing the complexities of chronic illness. From memoirs to self-help guides, these books cover a wide range of perspectives and experiences, making them valuable resources for both patients and their loved ones. Dive into these insightful and empowering reads to gain new perspectives and find comfort in the shared experiences of others.
Which book about Chronic Illness is best?
The best book on Chronic Illness can vary with personal preference, but three widely recommended titles are:
- The Bright Hour: A Memoir of Living and Dying by Nina Riggs,
- When Breath Becomes Air by Paul Kalanithi,
- Sick: A Memoir by Porochista Khakpour.
Each offers valuable insights and could be a great starting point.
What are the best books to learn about Chronic Illness?
For those looking to learn about Chronic Illness, there is a wealth of literature that can provide a comprehensive understanding of the subject. Some of the most highly recommended books include:
- The Bright Hour: A Memoir of Living and Dying by Nina Riggs,
- When Breath Becomes Air by Paul Kalanithi,
- Sick: A Memoir by Porochista Khakpour,
- The Sound of a Wild Snail Eating by Elisabeth Tova Bailey,
- The Empathy Exams: Essays by Leslie Jamison,
- The Diving Bell and the Butterfly by Jean-Dominique Bauby,
- Brain on Fire: My Month of Madness by Susannah Cahalan,
- The Year of Living Danishly: Uncovering the Secrets of the World’s Happiest Country by Helen Russell,
- The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After by Julie Yip-Williams,
- The Rules Do Not Apply: A Memoir by Ariel Levy
These books offer a range of perspectives on Chronic Illness, covering various aspects and approaches to the subject.
What are the best books about Chronic Illness?
The best books about Chronic Illness are:
- The Bright Hour: A Memoir of Living and Dying by Nina Riggs,
- When Breath Becomes Air by Paul Kalanithi,
- The Man Who Couldn’t Stop: OCD and the True Story of a Life Lost in Thought by David Adam,
- The Still Point of the Turning World by Emily Rapp,
- The Year of Living Danishly: Uncovering the Secrets of the World’s Happiest Country by Helen Russell,
- The Diving Bell and the Butterfly by Jean-Dominique Bauby.
Each offers unique insights into the subject. While these books about Chronic Illness are highly regarded, it’s important to note that any list of ‘best’ books is subjective and reflects a range of opinions.
What are the best Chronic Illness books of all time?
Choosing the best Chronic Illness books of all time can vary depending on who you ask, but five titles that are often celebrated include
- The Bright Hour: A Memoir of Living and Dying by Nina Riggs,
- When Breath Becomes Air by Paul Kalanithi,
- The Empathy Exams: Essays by Leslie Jamison,
- The Year of Living Danishly: Uncovering the Secrets of the World’s Happiest Country by Helen Russell,
- and The Man Who Couldn’t Stop: OCD and the True Story of a Life Lost in Thought by David Adam.
Each of these books has made a significant impact in the field of Chronic Illness and continues to be influential today.